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Global Rare Disease Summit Kicks Off in Shanghai 🌏💊

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Over 1,000 researchers, advocates, and policymakers from 50+ countries are gathering in Shanghai this week for the 2024 Global Rare Diseases Research Symposium. The event shines a spotlight on efforts to tackle conditions affecting fewer than 1 in 2,000 people – think 'medical unicorns' 🦄 that often lack treatment options.

Breaking Down Borders in Science

A highlight? The unexpected team-ups! 🤝 Researchers from the Chinese mainland and U.S.-based scientists shared breakthroughs in gene therapies during opening sessions. Dr. Li Wei, a Shanghai pediatric specialist, told attendees: \"Our shared human genome means collaboration isn’t optional – it’s survival.\"

Patients Take Center Stage

The symposium isn’t just lab-coats-and-microscopes 💻🔬. Day 1 featured viral TikTok creators living with rare conditions, sparking conversations about making treatments accessible worldwide. One young panelist joked: \"Finding others with my condition used to feel like matching on Tinder… now we’ve got a global support squad!\"

What’s Next?

Key challenges on the table: funding gaps (only 5% of rare diseases have approved therapies) and data-sharing between countries. But with China’s biotech sector growing faster than BTS’s fanbase 🚀, experts predict major strides in Asia-led innovations.

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